01-22-2010, 12:19 AM
Beau Wrote:Appreciate it Lolly. Yes he had the three surgeries by the time he was 3 yrs. The miracle about Eli is his undersized left ventricle is actually pumping blood. They had not ever seen that before down here at Texas Children's in Houston. So the prognosis for him is better than expected although there really isn't much more than 25 years of data to go by. He could live until he is 50 we just don't know. He may go anytime. He has gained weight and grown quite normally. He holds O2 sat's in the mid to low 90's. Dr Mott has been amazed with him throughout his 10 years. Looking at him you would never know the difference from other kids with the exception he gets tired quicker. Every day with him is a true blessing from God as far as I'm concerned. Thanks again for the kind words.
This is a really huge deal. No one really understands what you've been through with Eli--I don't need to tell you what his survival rate was 10 years ago. Those are awesome O2 sats for sure. As long as he doesn't get any funk-ass arrythmias or anything like that in his 20's-30's he should be okay, right? His survival rate woulda been what--75% at age 5? Gotta be looking good now. He'll always get tired quicker--but if he's not blue, no one will ever know the difference.
One of my best friends has been down in Houston at MD Anderson's proton beam radiation center (with her 13 month-old only son) for the past three months. I had no idea that's where you were. Antonio Mott is a legend.

